Spotlight on Country Working Groups – ABRAFEU, Brazil
Project Mercury works from one conviction: progress in FSHD has to be driven by the people who live with it. The Country Working Groups are
September 22, 2026
Project Mercury works from one conviction: progress in FSHD has to be driven by the people who live with it. The Country Working Groups are
During a recent FSHD Society University webinar, Project Mercury Chair Emma Weatherly reflected on three years of remarkable global collaboration and outlined the initiative’s strategic
Project Mercury publishes its Interim Progress Report 2023–2025 — a document that captures two years of coordinated, patient-led effort to prepare the world for FSHD
From 1–3 May 2026, representatives from Project Mercury participated in the 295th ENMC International Workshop on “Harmonizing Clinical Monitoring in FSHD”, held in Hoofddorp, The
In April, the Project Mercury Global Task Force (GTF) convened virtually for its quarterly meeting, bringing together patient advocacy leaders, clinicians, researchers, and partners from
Early April, Project Mercury was proud to be represented at the SOLVE FSHD meeting in Canada, where our Chair, Emma Weatherley, shared our work with
Today, March 19th, 2026, FSHD Europe announced its collaboration with TREAT-NMD and the PaLaDIn consortium to develop an FSHD disease model for health technology assessment
We celebrate a powerful step forward in raising awareness for Facioscapulohumeral Muscular Dystrophy (FSHD). Under the motto “1 in 10,000”, the FSHD Spain has launched
Facioscapulohumeral muscular dystrophy (FSHD) is at a turning point, with multiple disease-modifying therapies in development. To ensure global access, clinical trial readiness across diverse regions
The Global Task Force (GTF) convened in Vancouver for its sixth meeting, bringing together international leaders, patient advocates, and industry partners in a hybrid format
Project Mercury is built on the conviction that meaningful change in FSHD research and care must be driven by those most affected—patients, families, and the
Project Mercury is built on the conviction that meaningful change in FSHD research and care must be driven by those most affected—patients, families, and the
Knowledge, Connection, and Hope This year’s DGM FSHD Germany Patient Day was a resounding success, bringing together a vibrant mix of familiar faces and many
Project Mercury is built on the conviction that meaningful change in FSHD research and care must be driven by those most affected—patients, families, and the
The 2025 Walk & Roll season is officially underway — and it’s already proving to be one of the most inspiring yet. Across North America,
This past weekend, the FSHD community in Canada came together in a powerful display of unity, resilience, and purpose. Hosted by the FSHD Society Alberta
We celebrate the remarkable success of SingelSwim Utrecht 2025, an inspiring community-driven event that raised over €67,000 for research into Facioscapulohumeral muscular dystrophy (FSHD). Organized
At Project Mercury, we are proud to spotlight the incredible work of our partners at the FSHD Global Research Foundation, recently featured on A Current
Project Mercury, a global initiative dedicated to accelerating readiness for FSHD therapies, marked a significant milestone at its 5th Semi-Annual Global Task Force (GTF) meeting.
Project Mercury’s Global Task Force (GTF) convened in Barcelona on December 7–8, bringing together international leaders in FSHD research, advocacy, and policy to chart the
The Global Task Force (GTF) of Project Mercury convened in Denver on June 17–18, 2024, to align on key priorities for advancing FSHD research, trial
On 11 May in Leiden, NL, the Project Mercury global task force members met for the first time to chart the path forward for achieving
Project Mercury’s work is innovative and often complex. Thus, a little explanation about some of the terms we often use is probably in order! Access
The International Space Station. The Human Genome Project. The cure for polio. Great feats that required different scientific breakthroughs but shared one common attribute. Focused