The Global Task Force (GTF) of Project Mercury convened in Denver on June 17–18, 2024, to align on key priorities for advancing FSHD research, trial readiness, and global access. The meeting brought together leading stakeholders from academia, industry, and patient advocacy to refine strategies and accelerate progress across multiple workstreams.
Key Developments and Strategic Focus Areas
The Denver meeting emphasized the importance of operational clarity, stakeholder alignment, and sustainable infrastructure to support the next phase of Project Mercury. Topics included:
• Access and Regulatory Alignment
• Trial Readiness and Data Infrastructure.
• Genetic Testing and Counseling
• Care Guidelines and Clinical Practice
• Industry Engagement and Pipeline Updates
• Sustainability and Communication
• Country Working Groups (CWGs)
Looking Ahead
The Denver meeting reinforced Project Mercury’s commitment to structured, transparent, and inclusive global collaboration. With new deliverables in motion and expanded industry participation, the initiative is well-positioned to drive meaningful progress in FSHD research and patient readiness.
The next GTF meetings are scheduled for December 7–8, 2024 in Spain, and June 22–23, 2025 in Amsterdam.
