These questions led to the formation of Project Mercury, a patient-led collaborative global initiative to ensure timely access to effective and affordable treatments for people affected by facioscapulohumeral muscular dystrophy (FSHD) everywhere.
Knowledge, Connection, and Hope This year’s DGM FSHD Germany Patient Day was a resounding success, bringing together a vibrant mix of familiar faces and many new participants. The atmosphere was one of curiosity, compassion, and collaboration—true to the spirit of Project Mercury, which aims to empower individuals with FSHD through
Project Mercury is built on the conviction that meaningful change in FSHD research and care must be driven by those most affected—patients, families, and the communities that support them. At the heart of this global initiative are the Country Working Groups (CWGs), where national voices converge to shape international impact.
The 2025 Walk & Roll season is officially underway — and it’s already proving to be one of the most inspiring yet. Across North America, communities are coming together to raise awareness, build connection, and drive progress toward a future free from facioscapulohumeral muscular dystrophy (FSHD). From coast to coast,