Project Mercury - The Global Initiative to Speed the Delivery of Therapies for FSHD

The Global Initiative to Speed the Delivery of Therapies for FSHD

The Global Initiative to Speed the Delivery of Therapies for FSHD

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  • What if a therapy for FSHD were approved but patients can’t get it?
  • What happens if there aren’t enough patients or sites to conduct FSHD clinical trials?
  • How do you solve these challenges?

These questions led to the formation of Project Mercury, a patient-led collaborative global initiative to ensure timely access to effective and affordable treatments for people affected by facioscapulohumeral muscular dystrophy (FSHD) everywhere.

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About Project Mercury

About Project Mercury

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Partners

Partners

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Global Task Force

Global Task Force

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News & Updates

News & Updates

News & Updates
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News & Updates

Project Mercury Global Task Force Charts Path Forward at Vancouver Meeting

The Global Task Force (GTF) convened in Vancouver for its sixth meeting, bringing together international leaders, patient advocates, and industry partners in a hybrid format to review progress and define the next phase of Project Mercury. The two-day session underscored the initiative’s unwavering commitment to accelerating global readiness for facioscapulohumeral

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December 18, 2025 No Comments

Spotlight on Country Working Groups – FSHD Spain

Project Mercury is built on the conviction that meaningful change in FSHD research and care must be driven by those most affected—patients, families, and the communities that support them. At the heart of this global initiative are the Country Working Groups (CWGs), where national voices converge to shape international impact.

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November 17, 2025 No Comments
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