These questions led to the formation of Project Mercury, a patient-led collaborative global initiative to ensure timely access to effective and affordable treatments for people affected by facioscapulohumeral muscular dystrophy (FSHD) everywhere.
Early April, Project Mercury was proud to be represented at the SOLVE FSHD meeting in Canada, where our Chair, Emma Weatherley, shared our work with an international community of researchers, clinicians, industry partners, and patient advocates. The meeting provided a valuable opportunity to connect with leaders from across the FSHD
Today, March 19th, 2026, FSHD Europe announced its collaboration with TREAT-NMD and the PaLaDIn consortium to develop an FSHD disease model for health technology assessment (HTA), FSHD patient journey and patient advocacy toolkits. FSHD Europe strengthens its capacity in HTA evidence generation through a partnership with the institute for Medical
We celebrate a powerful step forward in raising awareness for Facioscapulohumeral Muscular Dystrophy (FSHD). Under the motto “1 in 10,000”, the FSHD Spain has launched a compelling public awareness campaign—a video directed by the prestigious filmmaker Chus Gutiérrez. This spot is more than a production; it’s a voice for those
This project is supported by the Innovative Health Initiative Joint Undertaking (IHI JU) under grant agreement No 101132943. The JU receives support from the European Union’s Horizon Europe research and innovation programme, COCIR, EFPIA, EuropaBio, MedTech Europe, Vaccines Europe (and the FSHD Society and TREAT-NMD Services Ltd as contributing beneficiaries participating in the project). The project will also receive funding from UK Research and Innovation (UKRI) under the UK government’s Horizon Europe funding guarantee [grant numbers 10105921, 10103989, and 10083579].
Funded by the European Union, the private members, and those contributing beneficiaries of the IHI JU. Views and opinions expressed are, however, those of the author(s) only and do not necessarily reflect those of the aforementioned parties. Neither of the aforementioned parties can be held responsible for them.