These questions led to the formation of Project Mercury, a patient-led collaborative global initiative to ensure timely access to effective and affordable treatments for people affected by facioscapulohumeral muscular dystrophy (FSHD) everywhere.
We celebrate a powerful step forward in raising awareness for Facioscapulohumeral Muscular Dystrophy (FSHD). Under the motto “1 in 10,000”, the FSHD Spain has launched a compelling public awareness campaign—a video directed by the prestigious filmmaker Chus Gutiérrez. This spot is more than a production; it’s a voice for those
Facioscapulohumeral muscular dystrophy (FSHD) is at a turning point, with multiple disease-modifying therapies in development. To ensure global access, clinical trial readiness across diverse regions is critical. This publication idea was initiated through Project Mercury in collaboration with others to offer a practical toolkit for new trial sites. Drawing on
The Global Task Force (GTF) convened in Vancouver for its sixth meeting, bringing together international leaders, patient advocates, and industry partners in a hybrid format to review progress and define the next phase of Project Mercury. The two-day session underscored the initiative’s unwavering commitment to accelerating global readiness for facioscapulohumeral