At Project Mercury, we are proud to spotlight the incredible work of our partners at the FSHD Global Research Foundation, recently featured on A Current Affair—a powerful media moment that highlights how AI technology is transforming the future of FSHD research and care.
This story goes far beyond the screen. It’s a testament to what’s possible when collaboration, innovation, and courage come together. From enabling clinical trials for children with early-onset FSHD to advancing data-driven insights through partnerships with Swinburne University of Technology and Springbok Analytics, FSHD Global is helping to redefine what progress looks like in rare disease research.
We extend our deepest gratitude to the Priestley family for bravely sharing their journey. Their voice is helping to raise awareness and hope for families affected by FSHD around the world.
As a key member of the Project Mercury Global Task Force, FSHD Global plays a vital role in shaping a future where every person living with FSHD has access to the care, research, and support they deserve. Their leadership and commitment continue to inspire global efforts and accelerate meaningful change.
Together, we are building a world where FSHD is no longer a mystery—but a challenge we are solving, side by side.