The Global Initiative to Speed the Delivery of Therapies for FSHD

News & Updates

Author: Leon.Meyer

FDA clears IND for Forazapadin – The second FSHD program financed by patients this year

A candidate FSHD therapy is moving into the clinic, and a patient organization helped put it there. It is the second time this has happened

October 2, 2026

New Survey for the FSHD Community: Shaping Future Care and Support

Attention Patient Advocate Leaders: You are invited to participate in a study on Advance Care Planning and palliative care in FSHD. This study is conducted

September 25, 2026

Spotlight on Country Working Groups – ABRAFEU, Brazil

Project Mercury works from one conviction: progress in FSHD has to be driven by the people who live with it. The Country Working Groups are

September 22, 2026

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The Global Initiative to Speed the Delivery of Therapies for FSHD

The Global Initiative to Speed the Delivery of Therapies for FSHD

News & Updates

Author: Leon.Meyer

FDA clears IND for Forazapadin – The second FSHD program financed by patients this year

New Survey for the FSHD Community: Shaping Future Care and Support

Spotlight on Country Working Groups – ABRAFEU, Brazil

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